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Pilonidal disease Mate kōpukupuku karioi ki te kiri kumu
Pilonidal disease is a chronic skin condition which happens at the base of your spine in the gap between the top of your buttocks (your natal cleft).
Causes of pilonidal disease
We are not sure why pilonidal disease happens, but it may be due to:
- being born with a small dimple in the area
- damaged hair follicles that poke into your skin.
Once the hairs get stuck in your skin they irritate it, causing inflammation. A cavity can develop in this area called a pilonidal sinus.
This can form a lump (pilonidal cyst) that is not painful or red. This is not usually a problem unless it gets infected it becomes an abscess. A pilonidal abscess is very painful and needs medical treatment.
Some things are more likely to make this happening, including:
- having curly or coarse body hair around your buttocks
- family members who have had this problem
- being an unhealthy weight
- poor hygiene
- sitting for a long time, or repeated friction to the area causing increased sweating
- some other skin conditions.
Symptoms of pilonidal disease
When you only have a pilonidal sinus, you may not notice any symptoms, but you might have a small pit or dimple in your natal cleft. You might notice clear fluid coming from the sinus.
If you develop a cyst, you may notice a small lump, but this is not usually painful. If you have had the disease for a while, it may feel as if there is more than one lump.
You may only notice that you have pilonidal disease if the sinus or cyst becomes infected.
Symptoms of pilonidal abscess may include:
- a painful lump or swelling near the top of your butt crack
- redness and tenderness
- a pus-filled boil or abscess
- pain when you sit down for too long or move
- a fever, if it is infected.
If you have any of these symptoms it is important to see your healthcare provider for treatment.
Diagnosing pilonidal disease
Your healthcare provider will ask about your symptoms and look at the area where you have pain or swelling.
You are unlikely to need any special tests to diagnose pilonidal disease or abscess.
Self care for pilonidal disease
If you have pilonidal disease without any symptoms you may not need treatment. But it is important to reduce the chance of it getting worse.
- Keep the area clean.
- Avoid tight clothing that increases friction or sweating.
- Aim for a healthy weight.
- Regularly remove hair from that area.
- Stop smoking, if you smoke.
Treating pilonidal disease
If you have a pilonidal cyst without an abscess, but are having symptoms, your healthcare provider may refer you for surgical treatment. There are several types of surgery. Your surgeon will give you details about each one.
See your healthcare provider as soon as possible if you develop an abscess with:
- pain
- swelling
- discharge
- fever (38oC or more).
They will refer you to a surgeon straight away. They will treat the abscess by draining the area. You may be given antibiotics if you:
- are unwell
- have other risk factors like heart valve disease
- are immunosuppressed.
It is important that you take pain relief while you are healing.
Pain relief medicine for adults
Risks of surgery
Having surgery involves some risks but these are usually outweighed by the benefits. Your surgeon will discuss the likely risks with you.
Healthcare services may be provided to you only if you make an informed choice and give informed consent to it. This forms part of your rights (Rights 5, 6 and 7) under the Code of Health and Disability Services Consumer Rights (the Code).
The Code and Your Rights/Ōu Mōtika — Health & Disability Commissioner
The 3 rights that together allow for informed consent are:
- Right 5 — the right to effective communication
- Right 6 — the right to be informed
- Right 7 — the right to choice and consent.
This means you must be told about the service being suggested, including any risks or possible complications. You must have the chance to ask as many questions as you need to understand the information you are given.
You also have the right to have someone with you to help you. But the decision to say 'yes' or 'no' must be yours (unless you are unable to make that decision due to illness or other impairment, or sometimes in an emergency).
You also have the right to be given the information in a language you fully understand. You can ask for an interpreter if you need one.