Advance care planning — End-of-life decisions Whakataunga hinganga

As you near the end of your life, you may have the opportunity to reflect on what you have done, as well as a chance to get things in order and make some other decisions before you die. Making plans can involve a variety of people, including whānau (family), friends, healthcare professionals or lawyers.


Planning for your medical care through advance care planning

While you can still make your wishes known, it is helpful to let people know what medical care you want if you become unwell. You may want to do this with the help of your healthcare provider. They can talk to you about advance care planning.

Advance care planning is a process of thinking and talking about your values and goals and what your preferences are for current and future health care. It helps you to understand what the future might hold and say what health care you would or would not want, including end-of-life care.

Advance care planning can include discussions about:

  • your priorities and what matters most as your health changes
  • whether you would want cardiopulmonary resuscitation (CPR) if it was offered
  • how you would like decisions to be made about your medical care — including who you trust to speak for you and what is important if you can not speak for yourself
  • where you would prefer to be cared for and to die at the end of your life.

What is advance care planning — Advance care planningexternal link

An advance care plan is where you can write down the things that are important to you for your care in the future. The plan will make sure your whānau and your future health care teams know what your wishes are, especially if you can no longer speak for yourself.

Creating your advance care plan — Advance care planningexternal link

If you have already had advance care planning conversations, or documented an advance care plan or advance directive, these can guide shared goals of care discussions and decisions if you go to hospital or move into aged residential care.

Shared Goals of Care are a type of advance care planning conversation that happens during each hospital admission or if you are living in aged residential care. These discussions involve you, your whānau, and your health care team talking about what matters most to you, especially if you become more unwell during a hospital admission or time in aged care.

A shared goals of care plan is the document where your health care team write down a summary of your discussion and the shared goals of care decision. If you become very unwell, the plan will make sure all of your health care team know what the agreed goals are for your treatment and care.

What are shared goals of care? — Advance care planningexternal link


Making a bucket list, and working through it

As you approach the end of your life, you might think about things you wish you had done or experienced. They can be as simple as trying a new food or as adventurous as travelling to a place you have never visited.

Doing some of these things can become more important when you know you have limited time left.

Planning a bucket list can help you focus on the things that are most important to you at this time in your life.

You can choose things that you would like to do, or do with support, which are important to you and you can achieve.


Planning for your funeral

Talk with your friends and whānau about what you would like at your funeral or memorial service. This will make it easier for them to arrange this at a time when they will be grieving for you.

If you choose to have a funeral, it may be a time when people come together to celebrate your life. It can be important for them to reflect on your life and how you affected their lives.

Some of the things you might want to arrange or decide are:

  • whether you want to be cremated or buried, and what you would like to happen to your remains
  • the funeral director you want to use
  • where your funeral will be held
  • what flowers or music you would like
  • what type of coffin you would prefer
  • who you would like to speak at your service
  • what special poems, songs or readings you would like
  • what videos or photos you want to be shown.

Planning a funeral or memorial


Planning how you will be remembered

People want to be remembered in different ways. These are just some ideas.

Involve friends and whānau in gathering together old photographs and arranging them in an album that shows the progress of your life.

If there is movie or video footage you are fond of, have it copied to a digital format for future generations to enjoy. You can find businesses that do this by searching online for 'video transfer'.

Tell your own story with memories of specific events that you may not have told your whānau about. You can also include stories that everyone has loved and enjoyed over the years. You can record these stories in your own voice, or you may wish to write them down.

Put together a memory box, with items from your life that people can remember you by. Doing this with whānau and friends will create a time for telling stories, and perhaps telling them things you may never have spoken about before.